ATLANTA -- It is estimated that one in every 570 adults is a survivor of childhood cancer, and a new online tool is helping grownup patients inform doctors of the care they received decades ago.
When she was diagnosed with ovarian cancer at 15 years old, Jordyn Farrell felt shock, anger and disbelief. She was an elite soccer player, whose parents never saw the diagnosis coming.
Jordyn's father, Nick Farrell said his wife called him with the news and let him know they were with an oncologist.
After several surgeries and four rounds of grueling chemotherapy, Jordyn was deemed cancer free. She now makes the transition from doctors who specialize in children to adults, looking back at the treatment she received and its long term affects are critical to her healthcare moving forward.
Nearly all pediatric cancer survivors face an increased risk for chronic conditions as adults as a direct result of their cancer care.
Dr. Lillian Meacham of Atlanta's Aflac Cancer center developed a web program called "Survivor Link," where patients can upload important documents that tell their new doctors their complete medical history.
"It's a tool patients can use to store their key health documents, their survivor healthcare plan which summarizes their cancer treatment," Meacham said.
The program flags potentially harmful medications for treatments. For example, if Jordyn needs surgery, her anesthesiologist shouldn't use pure oxygen, it could be toxic to her lungs.
Jordyn also says it's helpful when she tells her new doctors the tests she needs to prevent problems down the road.
"I have to get a pulmonary function test, and an audiology test, and a kidney function test and blood tests" Jordyn said.
Those tests are small fights, now that the bigger battle has been won.